The Consumer Officer will be an integral part of the Rare Diseases group at the Menzies Institute for Medical Research. They will assist in bridging the gap between people and families living with rare diseases in Tasmania and the clinical researchers who are determined to reduce the barriers to optimal healthcare for rare diseases throughout our rural and regional centres.

The Consumer Officer will develop and coordinate a consumer advisory group and will be the voice for consumers as we develop new research programs, including co-designed initiatives.

Duties Include

Assisting in the development and coordination of the rare disease’s consumer advisory group. Participating in co-design research initiatives as a consumer voice. Liaising with key stakeholders to ensure program outcomes are meeting their requirements.

Skills And Experience

Lived experience of a diagnosed or undiagnosed rare disease/s (either personally affected or as a carer or family member). Demonstrated knowledge, skills, and experience to effectively engage and lead consumers and/or consumer groups to gather, synthesise, and advocate for a united consumer voice to directly inform health system improvements. Experience with tertiary academia and/or research, project management, or other similar positions.

How To Register Your Interest

To express your interest, please submit the following as part of your application:

Cover letter (1-2 pages) outlining your motivation and relevant experience Resume

Enquiries

For further information about this role, please contact Dr Lauren Akesson, [email protected]